Sunday, November 21, 2010
No News is Good News
If you have been eagerly awaiting an update after our super intense/emotional day on Thursday, we apologize for a bit of a delay. The past 2 days have actually been very good. Ella has been surprisingly stable and hasn't had any of the episodes that prompted the doctors to begin thinking ahead for worst case scenarios. In fact a lot of her numbers (blood pressure, hear rate, kidney function) have become more ideal. Even an x-ray appeared to show a fairly significant decrease in the size of her heart. But the key is still the performance of the heart, so we are cautious to read too much into everything - but at the same time hopeful - as we await the next echogram on monday morning. Still, we can't help but enjoy that apparent improvement and more importantly, seeing her in the most peaceful rest she's had so far.
We continue to pray for a calming of our hearts as we think about the future. We have been doing our best to take it day by day, but we also can't help but look ahead a bit & wonder how this will play out for us & our family (mostly in the practical, day-to-day sense). It's kind of a grind to visit the hospital multiple times a day when you have two great boys that need your time & attention as well - especially when Ella is having scary ups & downs. Then there's the hypothetical situation where this goes on for weeks, even months (which would be totally fine if it meant Ella got better). But how can we establish a healthy routine if each day could be our last with Ella, yet we still have to deal with the practical realities of life (work, bills, responsibilities, etc)? How can we function as everything around us moves forward when all we want to do is keep our life on hold? We know this will be a struggle to work out, but we ask for your prayer that we would remember to fully trust God every day. He already knows what we will need and has it taken care of if we just let him, so what good is it to over-worry, over-plan & over-think things? Isn't that saying we don't believe He will come through? Lord, help us to truly believe that you always come through.