Tuesday, November 23, 2010

Echogram Update

Now for the latest echogram news...  We were originally a bit down about it because the doctors essentially told us that there has been no improvement and that they would have to start some medication to thin out a blood clot that has been forming in her left ventricle.  But they also said they wanted us to speak directly with the cardiologist team since they are the specialists and all the doctors see is a written report (they don't actually look at the echogram).   We just had that conversation less than an hour ago & it was quite a bit more encouraging.

They told that there has actually been some improvement in the ability of her left ventricle to pump blood since she was born (estimated at about 10% better).  Her heart size has also shrunk a little bit and she appears to be getting the necessary blood flow to her brain, kidneys & other organs.  In summary, her heart is doing better than it was her 1st week of life - & that's a good thing (although it was unexpected from a medical standpoint).  Even though she needs to have considerably more cardiac improvement to become "viable", she has proven thus far to be a survivor.  Thank You, Lord.


We still have to take it day by day & week by week to see if her heart continues on this slow, gradual trend upwards.  There will continue to be little bumps in the road, such as todays news of a suspected infection, the blood clot & making sure the blood thinner doesn't cause some type of detrimental bleeding.  But despite these potential scares, we are joyful to hear the first really optimistic news we have heard from a cardiologist.  So we will take that blessing and give thanks for it.

16 comments:

Amy... said...

Wow! She sure is a fighter! Love hearing the encouraging news and sweet pictures. Love you all.

Rachelle said...

Praise you Jesus! I pray God continues to keep his healing hand on Ella and that you continue to allow Him to carry you through this time. A miracle is a miracle...gradual or immediate. I pray everyday God continues to bless you with the miracle of Ella in your life and eventually in your home. Oh I pray little Ella feels our Heavenly Father's arms wrapped around her each day.

Jen said...

Crying tears of joy!!! Praise God!

We are continuing to pray for your family and for all the bumps you may encounter on this journey.

We love Ella and are so thankful for her!!!

pwrhouse22 said...

Praying! Praying! Praying! Healing and Strength! God we thank you for the improvements with Ella and we ask that she would continue to gain strength and healing! You are changing so many hearts through this beautiful little girl and her family - mine included. May her heart and ours continue on the journey to wholeness in You!

Chic Mama said...

Praise Jesus! She is a fighter indeed! How amazing to see God working and even proving those medical professionals wrong! Maybe the cardiologists are actually the ones whose hearts need mending and Ella is just the little miracle to do it!

Linda said...

I love the picture of her little finger on her lip as if to say "shhhh..I need my rest." How sweet!
Thank you Lord for this miracle you have brought to our family!!

AndiMae said...

Thank you so much for the update! Every little bit of improvement is an answer to prayer! I will continue to pray that God protects her little body as she fights this infection and that He continues to fill you both with His peace. Hope you are having a restful, cozy afternoon! We love you!

Cottage Mommy said...

That is indeed news to be thankful for as we go into the Thanksgiving holiday! Thanks for sharing this latest bit of news. I love seeing the photos - she is such a beautiful girl! Love to you all!

Courtney Henson

Marcia said...

Christa and Erik
We were so happy to learn about Ella's latest cardiologist words, she is definitely a fighter and it is amazing how such a tiny beautiful little creature can be so strong.Keep your hopes up!God wants her with you!
Love,
Márcia and Paul

Happy Family said...

Ella is such a beautiful baby. I love the new pictures.
Cami Anderson

Jenny said...

Thanks for the wonderful update! It encouraged my heart. Love the sweet pictures, too.

Linda said...

Rejoicing with you, no matter the size of improvement - God's glory doesn't need to be measured.
Continuing to pray.
Sending love your way.

Andi's mom - Linda

BP Express said...

Praises flying from our house left and right! Way to go, Ella!

The Fain Family

Roger said...

Praying for your little Ella Louise that Jesus holds her in the palm of his hand and a miracle comes about for you and your family. May Our Lord Be with you all, The Tate Family

cheryl said...

We are so pleased to hear some good news about Ella. She is just beautiful and obviously, is quite a fighter. We continue to pray for her healing and strength and comfort for you.

Tommy and Cheryl Dobson

jonesfamily said...

I love that second picture of her. She is beautiful and she carries so much strength in those eyes. We will keep praying!

Julie